Comments on: Disabled Child: Advice for Parents of Disabled Children http://arch-online.org/disabled-child-advice-for-parents-of-disabled-children.htm Your guide to disability rights and disability truths. Thu, 10 May 2012 08:21:43 +0000 http://wordpress.org/?v=2.9.1 hourly 1 By: Karen Hill http://arch-online.org/disabled-child-advice-for-parents-of-disabled-children.htm/comment-page-1#comment-21990 Karen Hill Mon, 01 Nov 2010 20:39:00 +0000 http://arch-online.org/?p=242#comment-21990 Oh Laura I am in the same boat as you are, however my son is only 6. Our children sound so alike in so many ways, peeing outside the toliet, breaking things ripping things up, tearing down the window treatments etc. the list is endless. I am also recently divorced, and praying that I can find some finanical assistance as I was awarded the family home as to not break my sons schedule or upset him anymore then he already is due to the fact I was a stay at home mom since he was born and now have to work full time. What a lonely battle I have ahead of me. I hope and pray that things will get better for you. Please dont feel you are alone, email me anytime NJKH73@yahoo.com. Karen Oh Laura I am in the same boat as you are, however my son is only 6. Our children sound so alike in so many ways, peeing outside the toliet, breaking things ripping things up, tearing down the window treatments etc. the list is endless. I am also recently divorced, and praying that I can find some finanical assistance as I was awarded the family home as to not break my sons schedule or upset him anymore then he already is due to the fact I was a stay at home mom since he was born and now have to work full time.

What a lonely battle I have ahead of me. I hope and pray that things will get better for you. Please dont feel you are alone, email me anytime NJKH73@yahoo.com.
Karen

]]> By: Laura Barrett http://arch-online.org/disabled-child-advice-for-parents-of-disabled-children.htm/comment-page-1#comment-8120 Laura Barrett Mon, 21 Jun 2010 00:58:22 +0000 http://arch-online.org/?p=242#comment-8120 I am a mother of a severly autistic child who requires constant supervision for safety and to prevent the destruction of numerous things in our home as well as urinating outside of the toilet. As a full time working, soon to be divorced Mom, I am not eligible for help. I am not rich and work overtime just to be able to pay all my bills. I have 3 other healthy children under the age of 13 who have had to take on a lot of responsibility. What kills me is that as an RN in the Bronx, much of my patient load are healthy single parents unemployed and on medicaid. Or they have come to this country and are immediately set up with public assistance. What happened to sponsors? They are receiving free housing, food stamps, free medical etc. A number of my other patients are government sponsored drug addicts who are still drug addicts but now it's "legal" since a doctor prescribes their methadone, oxycontin, valium and a host of other addicting drugs. They are allowed to have child after child they are unable to care for, at tax payers expense and receive SSI. Am I angry? You guessed it. I have worked my entire life, married and saved for a house before I had children. We have paid thousands out of pocket for therapy since insurance won't pay for autistic therapy claiming it's an educational issue although we all know it's a neurological disorder. Where am i going with this? My son needs constant attention to prevent the destruction of our home and to maintain safety as I mentioned earlier. After years of begging, I receive 4 hours of respite and 4 hours of reshab but it's on the days they can do and not necesarily when i need it. A bed ridden cerebral palsy child could get 24 hour care. My son , who is way more work because he can ambulate, open windows, tears things up, has broken half the chairs in my kitchen, destroyed a recliner chair and couch, raids the refrigerator and cabinets that we have to remember to lock them constantly, takes all the paintings off the walls , broken more than half the window grids in our home pees around the toilet instead of in it, and at 150 pounds needs toilet hygiene care, and total care for bathing and oral hygiene. He can also be agessive when angry. But because he is autistic, I can't have the home health aid he desparately needs. I've met too many who give their kids up into residential programs. How much does that cost the government? Isn't it better they help working taxpayers us so that we can keep our kids home? When I asked the government for help they told me I'd have to leave my job, sell my house and car and then they'd help me. So they'd rather help those who pay no taxes and set the example to their children that one should not work, but instead, take, take , take from the working taxpayers? It's better for the child and cheaper for the government if they would assist the working parent who is setting a good example for her children. Any advice. I'm bordering on a nervous breakdown. I so love my son. He can't help what he does but it's sooooo hard to deal with. Help me please. I am a mother of a severly autistic child who requires constant supervision for safety and to prevent the destruction of numerous things in our home as well as urinating outside of the toilet. As a full time working, soon to be divorced Mom, I am not eligible for help. I am not rich and work overtime just to be able to pay all my bills. I have 3 other healthy children under the age of 13 who have had to take on a lot of responsibility. What kills me is that as an RN in the Bronx, much of my patient load are healthy single parents unemployed and on medicaid. Or they have come to this country and are immediately set up with public assistance. What happened to sponsors? They are receiving free housing, food stamps, free medical etc. A number of my other patients are government sponsored drug addicts who are still drug addicts but now it’s “legal” since a doctor prescribes their methadone, oxycontin, valium and a host of other addicting drugs. They are allowed to have child after child they are unable to care for, at tax payers expense and receive SSI. Am I angry? You guessed it. I have worked my entire life, married and saved for a house before I had children. We have paid thousands out of pocket for therapy since insurance won’t pay for autistic therapy claiming it’s an educational issue although we all know it’s a neurological disorder. Where am i going with this? My son needs constant attention to prevent the destruction of our home and to maintain safety as I mentioned earlier. After years of begging, I receive 4 hours of respite and 4 hours of reshab but it’s on the days they can do and not necesarily when i need it. A bed ridden cerebral palsy child could get 24 hour care. My son , who is way more work because he can ambulate, open windows, tears things up, has broken half the chairs in my kitchen, destroyed a recliner chair and couch, raids the refrigerator and cabinets that we have to remember to lock them constantly, takes all the paintings off the walls , broken more than half the window grids in our home pees around the toilet instead of in it, and at 150 pounds needs toilet hygiene care, and total care for bathing and oral hygiene. He can also be agessive when angry. But because he is autistic, I can’t have the home health aid he desparately needs. I’ve met too many who give their kids up into residential programs. How much does that cost the government? Isn’t it better they help working taxpayers us so that we can keep our kids home? When I asked the government for help they told me I’d have to leave my job, sell my house and car and then they’d help me. So they’d rather help those who pay no taxes and set the example to their children that one should not work, but instead, take, take , take from the working taxpayers? It’s better for the child and cheaper for the government if they would assist the working parent who is setting a good example for her children. Any advice. I’m bordering on a nervous breakdown. I so love my son. He can’t help what he does but it’s sooooo hard to deal with. Help me please.

]]>